Foundation for Children with Atypical HUS

The Foundation for Children with Atypical HUS is a 501c3 organization dedicated to helping children with this rare disease. We are the only private organization in the world that is has funded medical research. We have worked with the University of Iowa....

Breaking News

  • Dec. 9, 2013:
    New Data Presented at ASH Annual Meeting Enhance Understanding of PNH and aHUS to Provide Optimal Care for Patients...
  • Jan. 23, 2013:
    The Foundation is proud to announce that Phyllis and Bill Talbot have assumed the Directorship roles for the Foundation...
  • Sept. 22, 2011:
    First and Only Approved Treatment for Children and Adults Suffering with aHUS...

The Foundation for Children with Atypical HUS

The Foundation for Children With Atypical HUS | Atypical HUS Information

This website is meant to be an easy source of knowledge for both parents and medical professionals. We encourage you to become familiar with this rare disease. Like all rare diseases, it is difficult for the medical world to learn all of the minute details. We hope you can become educated and make informed decisions. We also have an affiliate website that is interactive in nature, and we encourage you to become a member of that website: www.atypicalhus.org. If you join that website as a member, you will immediately belong to a caring community that is eager to help you.

Our website is divided into three main sections:

  1. General info (this page)
  2. Parents and Patients
  3. Medical Professionals

We hope you find it useful, and explore it in more detail. This website is meant to be an easy source of knowledge for both parents and medical professionals. We encourage you to become familiar with this rare disease. Like all rare diseases, it is difficult for the medical world to learn all of the minute details. We hope you can become educated and make informed decisions. We also have an affiliate website that is interactive in nature, and we encourage you to become a member of that website: www.atypicalhus.org. If you join that website as a member, you will immediately belong to a caring community that is eager to help you.